Nothing to earth shaking today, Angel’s doctor appointment went well enough, fibromyalgia is a real bitch, living alongside Angel everyday and watching this horrible disease take it’s toll on her physically and mentally gives me a brief glimpse of the misery that she lives with each day. Starting from a missed diagnosis and treating for random symptoms with this slowly setting in deeper and deeper, a couple months ago we got a migraine specialist that made the real diagnosis, that was an educational visit, we were there to see what he could do for her constant migraines, only to come back with fibromyalgia, and to make matters worse the migraine prevention medications she was taking were actually fighting the body from being able to produce the chemicals needed to fight them off itself, so the preventative meds were actually making things worse. Some she’s been able to just drop others have to be slowly tapered down from else make things worse.
For the last month or so things are improving for her, she’s a real fighter, but now a great day can be defined as one when we can go out goofing around and stuff or work in our reef tank for hours on end every now and again, three months ago it would have been if she was able set in front of and watch the tank for more than half an hour before running back to the bedroom to lay down from constant pain.
Today they ran some ultrasound and x-rays to make certain there were no blood clots or any fractures from previous incidents in her hip or leg that has been really bothering her for weeks now. Nothign unusual was found, just the damn fibromyalgia acting up. Geez four months ago I don’t think I could have even spelled it accurately, but now I have some idea of what is going on with it, note I said ‘some’. Seems each day we learn a bit more, though an old friend of Angel’s whom also suffers from this purchased a fantastic book for her. She’s learned more about what’s going on from a few pages than she has from all the time spent in the doctors’ offices. A lot of learning is heading my way.
Angel is considering writing a blog of her own to keep notes and maybe provide some useful information for others who may be similarly afflicted. If she gets it going I’ll be sure to post some links.

